Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts

Saturday, April 28, 2018

The Earrings





Last summer, after my mother passed away, I had been in a deep sadness, unable to find a reason to smile or laugh. Nothing made me happy, and the weight of loss lay deeply on my soul.

I saw in my email a note from Guidepost magazine. I'd sent them several of my writings before, but had totally forgotten about it from all that had gone on with my mother's failing health. When I opened the email, I saw that they accepted one of my stories! Joy flooded back in. A reason to smile, and even to sing once again! Someone had recognized something good in my writing. And of course, it was an article I'd written about my mom. The timing couldn't have been better.

I want to share that article on my blog today since everyone may not be subscribed to "Mysterious Ways," Guidepost's sister magazine. It is not as I originally wrote it, as their editors had an idea to focus on the earrings. I had to make a few changes to my first draft. Looking back now, I see exactly what they intended. May you be blessed by the little story you are about to read:



The Earrings
     Mom’s earrings. I had to find them.
     I dug through the top drawer of my bureau, rummaging through my jewelry box and the knickknacks accumulated over the years. Printed scarves, strands of beads, dried flowers. Where were those earrings? I could see them clearly in my mind. Pink teardrop diamonds framed by rhinestones. Costume jewelry from the nineteen fifties, certainly not worth much. Yet Mom had to have them.
I’d been at my parent’s house earlier filling their pill containers and washing a few dishes left from the night before.
     Mom had been sitting at the kitchen table, nibbling the corner of a jelly donut and licking her fingers like a little kid. Her wiry gray hair stood on end around her face. Food from the previous day stained her sweatshirt.
     “Kar,” she asked, using the nickname she always called me. “Do you have those earrings I gave you? The ones with the rhinestones?” She stared at me expectantly as if she needed me to understand.
Dad and I glanced at each other. I knew what he was thinking. How in the world could she remember something like a pair of earrings when she could barely remember the names of her grandkids? Dementia had turned my mother into someone I barely knew. And here she was trying to tell me something with those earrings—giving me a clue of some sort. But every time she mentioned them, I felt like we were speaking two different languages. Like I was losing my mother all over again.
We hadn’t always been close, Mom and I. When I was little, she suffered from deep bouts of depression. She’d been in and out of hospitals for most of my childhood. She got better around the time I entered high school. A time when we became like best friends. We remained that way until three years ago when Mom was diagnosed with dementia. Now every day only seemed to bring more darkness as Mom became like a stranger. I was worried for her. I was worried for Dad and me too. What did the future have in store for us? What little did it hold for Mom?
     “My earrings,” Mom said again.
     “I’ll look for them when I get home,” I told her, giving her a kiss. “I promise.”
     Now I picked though the clutter in my bureau, searching for a pair of earrings she’d given me some twenty years ago. She’d gotten them from her mother and then passed them on to me. I’d never seen her wearing them. Why were they so important now?
     I turned to a small wooden jewelry box, one I’d kept since I was a kid. I nudged aside my grandmother’s gold locket and an old cameo pin. Underneath a tarnished seahorse necklace, I saw them. Two brilliant pink gemstones. Mom’s earrings!
     The rhinestones twinkled, casting prisms of light against something else in the box. A piece of paper so worn I could barely read the writing. What was it doing in there? I picked it up and stared at it, recognizing it at once. A page ripped from my girlhood diary.
     I plopped down onto my bed as tears welled up in my eyes and then made their way down my cheeks.
     February 14, 1970, it read. Mom went to the hospital in an ambulance today. . .
     The memories flooded back. Valentine’s Day, 1970. Mom was thirty-three and I was eleven. Too young to know the full extent of her battle with depression, but old enough to know it was bad. Mom would arrive home from one of her hospital visits with dark circles under her eyes and a haunted look on her face. When relatives and friends came to visit, I’d hear whispered words like “crazy” and “suicidal.” Dad did the best he could to take care of both Mom and me, but I felt so alone. I’d escape to my room, soaking up fantasy books and writing in my diary, trying to imagine what it would be like to have a normal mother and a normal life.
     That Valentine’s Day, her admission was different. Mom had been rushed to the hospital. She’d suffered a cardiac arrest in our upstairs bathroom. I’d watched terrified as she was taken out of the house on a stretcher. I thought I’d never see her again, that she was gone. That her depression had finally caused her heart to stop. But a week later, Mom was back at home. And she was completely different.
     The dark circles were gone and her face glowed. When she spoke, I noticed that the confusion, anxiety and sadness had vanished. There was a lightness to her step I’d never seen before. My parents became affectionate once again. Laughter replaced hushed voices and secrecy. Mom finally fulfilled a dream of becoming an antique dealer. And several years later, at the age of thirty-nine, she gave birth to my brother. Life settled into the kind of routine I’d always envied in my friends’ lives.
     I didn’t question Mom about the change, too afraid the spell would be broken. It wasn’t until four years later, when I was in high school that my mother shared what had happened that Valentine’s Day.
     “You remember my cardiac arrest, Kar?” Mom asked one night while we made dinner together. “I didn’t tell you the whole story. I didn’t tell anyone except your father. I was afraid people would talk.”
     “What do you mean?” I asked.
     Mom paused. “Kar, that day in the hospital, I died.”
     I stared at Mom, confused. Died?
     “I remember falling in the bathtub,” she said. “But the next thing I knew, I was at the hospital, staring from above my body on a hospital gurney.”
     She felt herself floating away and found herself at the entrance of a dark tunnel. The further she traveled through the tunnel, the brighter it became. She became wrapped in a brilliant light, unlike anything she’d ever seen. The feeling of complete love washed over her, surrounding her. Yet after a few minutes, Mom felt herself being pulled back. All at once, she was on the gurney again. She heard the doctor’s exclaim, “She’s back!”
     “The light was so pure,” Mom said, a starry look in her eyes. “Like an all-encompassing love. That’s the only way I can describe it. I got a glimpse that day, sweetheart. Of the joy waiting for us all.”
     I stared at the page in my hand now, and the earrings—their light so brilliant, so like the light that returned to Mom’s eyes that long-ago Valentine’s Day and the light Mom encountered when she died and came back.
     She knew. Somehow, even in the midst of her dementia, Mom knew that I needed a reminder. Of the joy that awaits her, and the light that overcomes darkness.




This is my actual diary entry that I'd found. 

 





Wednesday, November 15, 2017

'Tis Almost The Season: A journey of grief and healing






Today at the dental office where I work, I saw an elderly dementia patient clutching her little bag of freebies as if they were the greatest thing she ever received. Even when her daughter tried to take the bag from her, she held it closely because to her, they were her possessions. She may not have much left in her memories, but at that moment, those little dental "gifts" became the most important thing to her. A lump formed in my throat, and a few tears sprang to my eyes. How that reminded me of my mother.

I think back to this time last year when Mom was still living in her own home. When all of us tried to do our very best with making sure she ate, keeping up with doctor visits and being sure she wasn't alone very long. She may have lost many of her memories, but she had small routines that meant something to her. Cats to feed and care for, and a dog that she adored. She would pull her driver's license out of her purse and her health insurance card and read them over and over. She read the small love notes from my father time and again. Oh how we rolled our eyes when she would begin these routines, never realizing how important they were to her, and how in small ways, they were keeping her memory going.

It may have been one of the most difficult times in our family, but we had the strength to go through it. I often wonder now how we did, because thinking about it now makes me feel exhausted. But when we needed it, God supplied exactly enough of His mercy and grace to us all.

Now Mom is gone four months. How I miss those little nuances of hers.What I wouldn't give to hear the same stories once again. And now the season is upon us that bring memories of family and traditions.

Halloween was tough for me without Mom because it was a holiday she had enjoyed so much. And now with Thanksgiving a week away, I can't help but think that even though it wasn't my favorite holiday, it was one of hers. How Mom loved her kitchen! The fact that she'd begin baking days in advance, planning her usual feast, and having it all turn out perfectly. A few years ago, even with Alzheimer's, she managed somehow. But last year was different, and she allowed us to take her to a restaurant for the day. I like to think she still enjoyed herself with her family surrounding her because she smiled and beamed through the entire meal.

Today I was thinking about where I am at this moment. With colorful decorations soon to be everywhere, joyous songs and yearly traditions, I feel a bit blue. No, I won't ruin it for others, and I certainly can dig inside myself and find a little Christmas cheer, but I can tell I am not the same. I don't feel the need to make dozens of lists: of cookies, shopping, cleaning and planning. This year, time means more to me than ever. The time I will spend with my our children, my brother and family, and dear friends. This year, I want Christmas to be different. I will not over do my spending, for I will be more thoughtful now. There is no quota to meet, no amount more precious than a kind word to a loved one, giving of myself, and feeling thankful for all the blessings in our families.

And I must remember to be kind to myself. I lost two parents in the span of nine months. No, I may not feel like celebrating this holiday season. I may be quieter than usual, a little less festive. I may not put up every single decoration that I have from years past. And that is okay. I'm giving myself the gift of time too. Time to grieve and remember. Time to reflect. But mostly, I'm giving the gift of time to heal.

I hope that family understands where I am this year. That it is nothing against them. It's a process that will bring happiness and sadness; memories good and bad. But I hope they all realize how much I love them, and though I am changed, my heart can still hold all the love it's always had for them and even more.

Monday, July 17, 2017

Best Memory




When the priest asked what my best memory of my mother was recently at the blessing service for her at the funeral home, it  didn't take me long to recall one for it was recent.

What does one say to a lifetime of love and memories? How can a person choose their absolute best moment or moments with a beloved parent that they are saying goodbye to?

Like snippets of a movie, years worth of laughter, tears, joy and fears played before me. I remembered Mom standing by during my surgery for scoliosis as a teen, even though she'd been a nervous type but she remained steadfast and my rock of strength.

When divorce reared its ugly head in my early twenties, my mother was there to rescue me. When fat, ugly tears fell from my eyes and the lies kept surfacing that I wasn't good enough for him and never would be, Mom helped me feel worthy again.

Moments of giggling together like school girls, though she was my parent, surfaced and drew me in once again and I warmed from the glow. Times of celebration and holidays, the birth of my son, her first grandchild. So many wonderful memories.

But when asked the question by the priest, I almost immediately responded: "Being caregiver for my mother with her journey of dementia." Father Carr almost fell from his chair. "Really?" he asked.

Why are those the dearest memories my brother and I hold now? The answer is simple. We got to experience unconditional love given back to a woman who had once loved us the same way. This woman had given her all many times for us.

 When a parent has Alzheimer's or dementia -related issues, it is never easy. You wonder if you are the one losing your mind at first. For the questions begin--oh so many questions. Things are forgotten, appointments are missed, and everything seems upside down.

Then the anger sets in. And for all of us, it is a time of great guilt. When you find yourself snapping at your elderly parent and watch the hurt in their eyes, the words practically hanging in the air, you wish you could pull them back, place them into a locked box never to surface again. But they do. Just when you feel strong, confident and a little cocky, a challenge arises and you fail. You ask forgiveness and you fail again. The maddening cycle--the new normal. Why oh why couldn't they have kept their wits about them to the end?

But then you see them in the most innocent of ways: thinning hair, gummy, lost-tooth smiles. Skin stretched too tightly over prominent bones. You hear whispered words and the innocence of a child, and you realize in their mind, that is where they are. You see fears of showering, falling, even eating foods they once loved. It's all this and more, and you fall deeply in love with your aging parent more than you ever did before. They rely on you, they trust you, and you begin to know that you will never betray that trust.

You also see wise, knowing eyes and the laugh- lined wrinkles around them from years of laughter. You hold onto a hand that worked hard at putting food on the table. You lay your head against their frail chest and listen to the beating of their good heart--wondering just how long it will continue. . .

You look at them and see inner beauty shining. No longer a body with a soul, they are now becoming a soul with a body. True loveliness as God intended, no longer superficiality.

There are treats they love, brought to them and watching their eyes light up. Sometimes there are favorite places to drive to. There are songs to be shared--ones they once sang to you as a lullaby. It's all this and so much more. Mostly it's giving of yourself. Giving selflessly and totally, turning your emotions and your loved one totally over to God. Knowing He adores them and you, and that we are the apple of His eye. He has all of our best interest at the center of His heart. Even if He chooses to take them home, how can we question that glorious time?

Yes, this time can be our best moments, our best memories. With God it is truly possible. Forgiveness, mercy, grace. . . all ours for the taking.




Sunday, May 28, 2017

It's Never Too Late





Mom was never the warm and fuzzy type. Not a hugger or a kisser, but my brother and I knew we were loved and adored growing up. She showed her care in so many other ways; with the baked goods and food she prepared every single day. With a listening ear for our school bully infractions, or the betrayal of our one true love. Advice given, words of wisdom, character building ones. A tender heart toward nature and toward others. No prejudice was allowed--Mom truly cared for all of mankind. This is who I am honored to call my mother.

Yesterday the tables were turned in a very dramatic way for me. Though her once beautiful mind has been faltering for some time with dementia, and my brother and I have been caregivers through it all, I had to step up to the plate of comfort in a major way.

The nursing home had called me about two weeks ago. They mentioned placing Mom on an anti-depressant. Said she had bouts of crying and depression. Hmmm, this was not something our family had seen recently. On the contrary, we noticed her talking more and laughing more when we are there as the strokes she had have begun to heal a little.

Cute little remarks, old inside jokes and our favorite of all, the movie lines we know and love so well are all things that continue to make Mom smile. We'd do anything for that smile. And yet yesterday while visiting her in the early morning, I saw my mother break down uncontrollably for several minutes and my heart broke.

As the nurse was bathing and dressing her in bed, Mom appeared to have had enough. I think her arthritis was hurting as it always does in the early morning when rising. I think she realizes she is limited, so limited in her adult briefs and inability to dress alone or stand alone. I can't imagine what goes through her mind in times like these, but she started to sob, deep heart-wrenching cries, and I did something uncharacteristic, I hugged her around the shoulders and stroked her back gently, reciting words of love and of comfort. The nurse she had isn't the most patient, but she stood back and let me do what only a family member could. Mom cried and I soothed. I held onto her and kissed the top of her head tenderly. And then I was able to do what all of us in the dementia/Alzheimer's community know best. I was able to re-direct her by talking about a pretty bracelet she was wearing. Like a small child, her tears slowed to sniffles. She saw the bracelet and answered my questions about who gave it to her. I sat back content that a crisis had been averted, and thanked God for giving me the tenderness needed in that moment even though I had never done this before with her.

I know we all come from different types of families. There are some of us who grew up with adoring parents who snuggled with them, gave tons of kisses and showed affection. There were others who grew up with harsh words, barked orders, and slaps instead of hugs. There are some who don't even know their parents and would have given everything for even one word from them or about them. I consider myself blessed that even though affection wasn't a big part of my years, I got so much more.

Pull yourself out of your comfort zone and love a little. Even those of us who have been hurt in our upbringing. Forgive, and let go. See our precious elderly for who they are now. People just like us with human failings, with imperfections and good and bad inside. Perhaps their own childhood was hideous and they didn't know any better. Look at them in a new light. Be the light of Christ in their world. Give that hug, say those words. Never let it be too late.


Tuesday, April 25, 2017

Moving On






Do you know what I'm really missing most about my father right now? It's our inside jokes and all the sayings we had. It's the make believe language he made up, and the nonsense phrases he always said. It's the lines from comforting, favorite movies watched over and over. It's seeing him conduct an unseen orchestra as his beloved waltz or classical thunder music played. It's picking pine cones from under trees on walks together. It's that sweet smile, soft voice, always happy man that put everyone else before him. It's the slow, steady walk through his front and back yard admiring flowers he planted and cutting lilac and pussy willow branches. It's all these things and so much more.

Do you know what I'm missing about my mother? A listening ear, advice given better than any therapist. Laughter and silliness, secrets shared. And once again, movies, movies, movies. The comforting ones that meant something to me and her. In later years, the stories we heard over and over as dementia began robbing her of recent memories,yet playing old time ones again and again. I miss them now yet I know them all and I know them well. And I, too, will be able to tell them long after she is gone.

Soon, my brother and I will be faced with one of the hardest tasks of our lives. We will have to sift through years and years of the life of our parents. With Mom now in a care facility, the precious home we all shared together will be broken apart and items distributed to those who may want them: wooden crafts our father made; airplanes, boats and houses. Well-worn recipe cards with the smattering of batter splashed upon them, from some of Mom's best loved favorites.

I'll walk through the rooms which meant so much to me. The living room where I envision the countless Christmases. Huge, fat trees decorated with fragile, precious ornaments from when our parents first married. Mountains of presents so carefully chosen for each of us. A favorite chair, an old, worn couch. Then into the small dining room where a table filled with baked Italian goodies and laden with other fine delicacies sits empty now.

The heart of our little ranch home--the kitchen always feels the warmest. For out of this room came a fresh home cooked meal each and every night. Out of this room came gooey pecan loaves, tasty pineapple upside down cakes and homemade pizza that would put one of the best restaurant pizzerias to shame. The table where we all sat, and the conversation and laughter that echoes in the stillness now.

I walk down the hallway toward our bedrooms and see the one converted into Dad's little craft room. The walls are adorned with thousand piece puzzles so carefully glued together as artwork. Tins of small bric-a-brac and tiny pieces of wood just waiting for the crafter's hands to pick up once again.

There are albums filled with the pictures of our lives. There are cards and letters so well-preserved in drawers and it feels as if Mom saved all of them throughout the years. How can one weed through so much and not feel emotional? For I know my heart will be breaking even as I begin the task at hand.

This house, this home saved our lives. For it wasn't where I grew up. We moved there when I was eleven. It was after the roughest time that my parents had gone through. Dad had made the decision to leave the only place we'd ever known, realizing it was best for us to make a change and start fresh.

I can still see the first time my parents showed the new house to me. It sat in a quiet, wooded neighborhood, not the cement jungle I'd grown up in. There was a large back yard and another smaller one. There was a finished basement, screened back porch. There was a sense of belonging of "coming home" so to speak. Yes, this is where our little family belonged. And it would be in this house that my brother was born fourteen years after me. Our miracle.

It won't be easy to toss things away. For you see, there's still a package of cookies, the last ones Dad bought for himself sitting on a shelf like an item from a shrine. There's notes written to Mom reminding her to take her pills and how to work the television remote.

I know I need to cancel our cable, internet and phone. Yet I hang on as long as I can, for once the phone is disconnected, the number that had been ours--mine since childhood will be forever gone. It may sound crazy, but these are the thoughts that plague me. I know God will grant my brother and I the strength we need when it is time. For there is nothing that will take away what is in our hearts. Nothing will take away the parts of Mom and Dad that live inside both of us. We are products of them both. And that is something that will never be lost.



Wednesday, March 29, 2017

Rainbows Will Return






Where to begin? A year ago, six months or perhaps only three weeks ago. This has been a life-changing, earth shattering time for our family. It was about this time last year that I noticed my father acting differently. Usually cheerful, our rock and our strength, Dad began to complain more than ever about how he was feeling, how difficult it was with Mom's worsening dementia, every bill he got in the mail, etc. Dad always had such joy talking with me about Spring and flowers and seed planting and birds. Simple morning conversations that I could live on for the rest of the day. That ended around this time in 2016. Little did we know we would lose Dad later that summer. That he was winding down, and the time had come for his well-deserved rest with Jesus.

Now our little family is going through this with Mom. Words cannot describe the feeling in my chest--of my heart splintering into tiny fragments, each one burnished with a memory good and bad alike. Only three short weeks ago we were able to take her out to eat, go for drives to her favorite stone bridge and listen to the creek. Three short weeks ago we saw a high school play and Mom sang along to the Disney tunes she knew and loved so well.

Yesterday we moved our mother into a care facility. I saw a woman before me that I barely recognized, completely devoid of emotion. Gone is the laugh that was so cute. Gone now are the stories told over and over, stories we all knew better than her, but listened patiently as they were told once more.

Her eyes hold a tiny spark of light when she sees either me, my brother or son. But I'd give anything to rejuvenate life back to her; of memories that would fill her with emotions once again.

She was wheeled into her new room and as she looked around at perhaps a few familiar items, my brother handed Mom a beautiful dolly he got her a few Christmases ago. One story our mother always told us was about a doll she received one year from a family friend. She would describe the beloved doll in great detail, and my brother tried to replicate one by searching many sites and finding one that Mom claimed looked exactly like the one she'd had.

Mom sat in her wheelchair stroking her dolly, covering her with the blanket that lay around her own shoulders. My eyes filled with tears and it was difficult to remain stoic. I stayed with her until much later in the day, watching old movies, trying to get her to eat in the dining room with new friends, seeing if talking about cooking and baking would bring her around just a little.

I left last night with the feeling of a tight band around the upper part of my stomach. The band of fear and uncertainty, for it was with me last August when my father was in the hospital. It is a hated companion this familiar tight knot of tension and worry.

I cannot find my laughter right now. I am not enjoying much. My work days are filled with stress and I don't like who I've become. I snap in anger over situations that I used to handle a little better. I'm not reading for pleasure, doing much writing, except these cathartic blogs. Most of my thoughts are of Mom and wondering how her day is going when we cannot be there with her every minute.

I've read about others who have gone through this before me. I see their smiling faces, their grandkids or trips they've gone on. I see that life does return and there will be rainbows and sunshine again. This is a season in my family's journey. The tale of two parents both so very loved and a life so very missed. My brother and I will hold on to what we have of our mother until her own story ends. And then we will make new memories and remember with fondness the old ones so lovingly tucked away in our hearts.




Wednesday, March 15, 2017

The Very Good Bad Day







I'd been planning this little excursion for weeks. One of Mom's favorite Disney cartoons had been "Beauty and the Beast." She watched it over and over with her grandson, my Matt, when he was very little, and then with me just as many times. I knew she would enjoy the local play.

Sunday arrived, and with her dementia, Mom kept asking, "Now what is going on today?" I'd explain that me and Matt were taking her to a high school production of one of her favorite movies. She seemed okay. Okay, that was, until we got her out. She complained about the weather; it was way too cold. The wind was blowing, and she had to walk pretty far to get inside the school and into the auditorium. What if she had to go to the bathroom? The list went on and on. I had a really bad moment where I lashed out and said, "Fine, if you're going to be like this, let's just turn around and go home." I meant it. All my planning for a perfect day, shot down with her negativity. I couldn't remember her Alzheimer's in that moment. All I could think about was me.

When the lights finally dimmed, Mom innocently asked, "Is this "Cats?" It was a question she would repeat at least twenty-five times or more. For some reason the musical "Cats" was stuck in her head. Then when the cast broke into a song she knew from "Beauty and the Beast" Mom would sing along, out loud mind you, and she appeared as if she was enjoying herself immensely. Then all over again, she'd say, "I want to see "Cats." My stress level was through the roof. I thought about getting up and leaving with her, but something said: stay until the end. This is a day for everyone to enjoy. Don't worry if she's embarrassing you. Don't think about the people around us who were hearing her say things out loud every so often. And not that I don't care for the feelings of others, but there have been many times in my life when I've sat near special needs children or adults. Yes, I'd always been understanding of what was going on with them.

When the play was over, Mom sat crying with the story she'd loved so much. The Beast is dying, and Belle's love saves him. It was a tale she'd told me as a little girl many times. And it was in this moment, that the little girl began to emerge in my mother. As we walked out of the auditorium, we spotted many of the characters from the play talking with friends and family. The lovely Belle posed for pictures with little girls who seemed enamored of their favorite character. Mom shyly asked, "Can I have a picture with Belle?" My heart cracked into two right at that moment. That little girl again, showing up through the wrinkled skin, thinning hair, and wheeled walker. "Of course," I said, and we snapped away at a few poses. In them, I can see Mom almost puzzling out why she was standing next to this lovely princess. In her mind, she may have been eight or nine again, believing in magic, beauty and love. Who was I to take that from her?

I think back on that day right now, and feel a pang of guilt at my impatience at Mom. Yet I also glow when I see how much she enjoyed herself.

The next morning, my mom woke up and on her way to the bathroom, she fell and hasn't been the same since. After a short hospital stay, she is now in a rehab facility. She can only speak in soft, garbled phrases. They aren't sure yet if she's had a stroke, or what might have brought this on. More childlike than ever, she is smiling and sleeping a lot. She talks in hushed whispered tones and can't answer most questions posed to her. I watched her during one of her moments of slumber and noticed she was talking to herself a little. I wonder if she's chatting with my father, her own Prince Charming who passed on before her. I wonder if he's there even now near her, whispering the words of love he's always said to her. I see her smile in her sleep and can only imagine.



Monday, March 6, 2017

Care For the Giver





I lay awake at four in the morning, totally unable to find that cozy spot once again or to stop the thoughts which pummel me from all sides. Will Mom be alright today? Will she eat and take her pills? What if she missteps and takes a fall? Is her health okay?

On the days I am with her, I try to give her my all. We begin with a scrumptious breakfast, bacon, french toast and coffee. I do my best Lumiere impression from "Beauty and the Beast" for her to "Be My Guest" as I serve her. I love to make Mom laugh, and it's no easy task always thinking up a barrage of chatter so she won't go down any of the paths of depression. Dementia is enough without the added sadness she sometimes carries.

I glance around for tasks which need done; wanting to be of help to my brother who is her nighttime caregiver. He does so much, and I want to make life a little bit easier for him too. I'll begin the wash, take care of the cats, do a light dusting, help Mom to dress or heaven forbid, take a shower. For this has not been easy and on the days I can coax her, I end up getting almost as wet as she does. I know she feels badly. It can't be easy having your daughter insist you do something that has become almost scary. For the tub isn't easy to maneuver with her bad leg, and getting her onto her shower seat takes patience and a little muscle as well.

Some days I take Mom for a drive to a favorite spot near a lovely creek and small stone bridge, knowing she and Dad loved to drive there each week. We may even grab a little food while we are out, but taking a walker in and out of the car and making sure she doesn't fall, gives every trip a little added stress.

 I orchestrate all her doctor, dental, eye and foot appointments like a well-oiled machine, seeing that she is cared for. And getting her to them is another feat in itself.

Once she is situated back home, I make sure that Mom has taken her late afternoon pills; or days when I am not there, try talking her into taking them on the other end of the phone. It's exhausting, these simple tasks, and sometimes as part caregiver, I want to vent and scream and even run away.

My friend Goldie reminded me that we must care for ourselves. We are no good to anyone if we don't first take time to do something nice for us. As another of my friends, Paula mentioned the other day, if  you were traveling on a plane and in an emergency the oxygen masks came down before you, you would first put the mask onto your own face so that you'd have enough breath to take care of your loved ones around you. We cannot help someone else if we can't breathe.We cannot thrive without oxygen, and that's what the caregiver needs; sometimes one small breath at a time.

It's been easy to fall into a trap recently--an endless pit of despair at times. Poor me, why me, etc, etc. But when I actually listened to these two remarkable friends, my spirits lifted and the shackles of depression began to abate. Some people find a little solace in having their nails or hair done, or purchasing a fun new outfit. Others enjoy a good workout at a local gym. There are those who take in a movie with a good friend, or share a cup of coffee with another. A long, hot bath, good music, all great for the caregiver. And some of these are easily accomplished.

I took in a movie the other day. And I've been taking time to read good books, listen to music I enjoy, and on occasion, even paint my nails with glitzy, fun colors. Yes, it's true--we must give care to ourselves a bit from time to time or we lose a little of who we are and all that we can do for others.

So, buy the new shirt, read that book, indulge in the dark chocolate you've been wanting. Call a friend and vent. Then vent some more. Laugh at a funny movie, or be inspired by a touching one. Do something for you! It makes the spirits soar and helps us to be a much-improved caregiver. Remember to breathe.




Tuesday, February 21, 2017

Our Shining Star






Count your blessings, they say. Think positive. Easy enough for people who aren't going through major life changes or depression.

I left for work this morning sulky and downcast. Though inspirational music played cheerily on my car radio, I couldn't muster one good thought. I arrived at work and the day began. Little by little, the routine began to settle me. I found that being busy was good for my spirits. And when a co-worker and I took a long walk during lunchtime, I turned my face upward to the shining sun and whispered a prayer of thankfulness.

As we returned to the office, I received a phone call from my son. He was going to spend a little time with my mother, his grandmother today. She had a doctor's appointment and he had volunteered to take her. He had questions for me, and I could hear in his voice that he was a little agitated, but he patiently answered the receptionist at the clinic while being respectful to my mother who kept talking in the background. My heart cracked in half as I thought of my son's goodness. It can't be easy for an almost thirty-year old to "hang out with grandma" one day a week. It can't be easy watching her mind failing, and answering her questions over and over, or listening to stories he's probably heard hundreds of times by now.

He took her out to eat after the appointment--something he does each week. He made sure she took her afternoon pills, knowing how much I worry about this every day. My mind could settle a bit as I relaxed and knew that Mom was in good hands. Matt is my mother's shining star, you see. She adores him and still refers to him as "My Darling." This is a name she has called him since he was a baby. I would walk into the house with Matt in my arms, and the minute he'd hear her say those words, his little feet would start kicking and he'd get the biggest smile on his face.

When she asked the other day who Matt was to me, my heart sank. But then I thought: at least she knows him. But I couldn't believe she didn't realize he is my son.

Matt is my shining star too, though. He is the blessing I am most grateful for every day of my life. His name, Matthew means gift of God, and it is appropriate. Any time I'm really down, I think of Matt and smile. His good heart, his infectious grin, his passion for causes that are right. Such a good young man. The best.

I am proud of him for more than this. He is someone who picked himself up from his own bout of depression. He cast off shyness that he'd had as a child, and did something about it. Matt took his passion to a whole new level and began doing what he really loved. Playing crane machines and making kids and their families happy. His YouTube channel and popularity have skyrocketed and I cannot think of a more deserving person.

I watch him at meet and greets when fans line up to talk with him. He takes time with each and every one of them, asking where they are from, and still humble enough to be amazed when they say they've come from out of state to see him. I see the looks on the faces of the children, the excitement of meeting their idol, and the joy from being there with him and it warms my heart. Matt gives of himself going above and beyond to make sure each child and family get plenty of attention. He's helped several kids who have been depressed as he shared a special story on his YouTube channel called "Draw My Life." And he donates his many wins to special charities and events. Yes, I cannot help but smile and feel very, very blessed when I think about the amazing person my son has turned out to be.

God, thank you for Matt, this gift you've given, this shining star for so many of us. And if anyone should be a true star in every sense of the word, I pray that Matt's popularity would grow and flourish even more in the years to come.

Hey, if you have a minute, check him out. Subscribe to his channel. I think he'll make you smile, too.

Matt's YouTube:
https://www.youtube.com/channel/UCMe8Y3zO7_la3uHaWR3OVrg

Matt's Facebook Fan Page:
https://www.facebook.com/matt3756official/

Matt's special story: Draw My Life:

 https://www.youtube.com/watch?v=MkpgB9BNQNY





Tuesday, February 14, 2017

Small Stories to Touch the Soul





I have chosen Valentine's Day to share a few small stories that I hope will encourage and bless you. If you are a caregiver of an elderly family member, please know you are not alone. And know that there are moments, these sweet moments that you will remember forever.

Love in the Golden Years


Love in the senior years: A true inspiration to me. My parents were married over sixty years. Sixty years of ups and downs, good health and bad, happiness and sadness. But one thing remained: a steadfast love. It was this love that inspired me to write stories; theirs, and another couple: my husband’s elderly aunt and uncle.

Louise, my husband’s aunt, had a stroke several years back and was hospitalized and eventually moved into a nursing home. Her husband, Hubert, took the time every single day to drive to see her. He helped her eat, talked with her even though she couldn’t speak well, and made sure every need of hers was met. There came a time he couldn’t drive any longer, and he would wait as the senior bus picked him up, not wanting to miss one day with his wife.

 When he suffered his own health crisis, he ended up in the same care facility. Though they weren’t in the same room, Uncle Hubert would wheel himself down the hall to spend time with his beloved each and every day.

Hubert and Louise didn’t have many family members, so I became a regular visitor of theirs. I watched as love appeared to grow even stronger as Hubert sat by his wife’s side, gazing upon her as if she was the most beautiful woman he’d ever seen, and talking to her as if she was the only person in the world who mattered.

Then came the day when we had to tell him that Louise had passed away. Brave man that he was, Hubert made it to the funeral. When he stood from his wheelchair to give Louise that final kiss, I thought my heart would break. 

He would live another two years without her, and it was during that time that I would grow closer than ever to him.


Expecting


One Christmas morning my husband Jim and I went to visit Uncle Hubert in the nursing home after Aunt Louise had passed away. We signed the guest book in the front lobby and walked through the doors to the hall that leads to the patient rooms. A little way up the hallway, Uncle Hubert was sitting in his wheelchair, the only patient in the immediate area, an expectant look on his face which broke into the most beautiful smile the instant he saw us. "Merry Christmas," he said, extending both arms toward us. We embraced and went into the dining room with him to chat. A lump formed in my throat as we spoke, realizing we probably got the most wonderful present by giving our time to this dear man. "I knew you were coming," he said to us. It was the strangest thing. We could have chosen any time that day for a visit, yet he knew in his heart it would be then. All our love, Uncle Hubert....


Basket of Love


There is a basket my mother keeps near her kitchen table, spilling over with love letters and cards that Dad sent her through the years. We lost my father only four months ago, and these writings have become a beautiful link to his love for Mom.

Every so often when I’m visiting, Mom pulls a crumpled page out and asks in a shy, giggling, school girl kind of way, “Did you ever see some of the notes your father wrote me?”

In her dementia, Mom doesn’t realize that I’ve heard the letters read many times now. But to her, it’s the first time. It’s a way to reignite the passion she and Dad shared, and makes her see herself as my father always saw her: as the young beauty he once courted.

Though the ravages of aging are upon her, the thinning, gray hair, bent body, and same sweatshirt stained with jelly from the previous day; inside is the young girl. The one my father loved.