Wednesday, March 15, 2017
The Very Good Bad Day
I'd been planning this little excursion for weeks. One of Mom's favorite Disney cartoons had been "Beauty and the Beast." She watched it over and over with her grandson, my Matt, when he was very little, and then with me just as many times. I knew she would enjoy the local play.
Sunday arrived, and with her dementia, Mom kept asking, "Now what is going on today?" I'd explain that me and Matt were taking her to a high school production of one of her favorite movies. She seemed okay. Okay, that was, until we got her out. She complained about the weather; it was way too cold. The wind was blowing, and she had to walk pretty far to get inside the school and into the auditorium. What if she had to go to the bathroom? The list went on and on. I had a really bad moment where I lashed out and said, "Fine, if you're going to be like this, let's just turn around and go home." I meant it. All my planning for a perfect day, shot down with her negativity. I couldn't remember her Alzheimer's in that moment. All I could think about was me.
When the lights finally dimmed, Mom innocently asked, "Is this "Cats?" It was a question she would repeat at least twenty-five times or more. For some reason the musical "Cats" was stuck in her head. Then when the cast broke into a song she knew from "Beauty and the Beast" Mom would sing along, out loud mind you, and she appeared as if she was enjoying herself immensely. Then all over again, she'd say, "I want to see "Cats." My stress level was through the roof. I thought about getting up and leaving with her, but something said: stay until the end. This is a day for everyone to enjoy. Don't worry if she's embarrassing you. Don't think about the people around us who were hearing her say things out loud every so often. And not that I don't care for the feelings of others, but there have been many times in my life when I've sat near special needs children or adults. Yes, I'd always been understanding of what was going on with them.
When the play was over, Mom sat crying with the story she'd loved so much. The Beast is dying, and Belle's love saves him. It was a tale she'd told me as a little girl many times. And it was in this moment, that the little girl began to emerge in my mother. As we walked out of the auditorium, we spotted many of the characters from the play talking with friends and family. The lovely Belle posed for pictures with little girls who seemed enamored of their favorite character. Mom shyly asked, "Can I have a picture with Belle?" My heart cracked into two right at that moment. That little girl again, showing up through the wrinkled skin, thinning hair, and wheeled walker. "Of course," I said, and we snapped away at a few poses. In them, I can see Mom almost puzzling out why she was standing next to this lovely princess. In her mind, she may have been eight or nine again, believing in magic, beauty and love. Who was I to take that from her?
I think back on that day right now, and feel a pang of guilt at my impatience at Mom. Yet I also glow when I see how much she enjoyed herself.
The next morning, my mom woke up and on her way to the bathroom, she fell and hasn't been the same since. After a short hospital stay, she is now in a rehab facility. She can only speak in soft, garbled phrases. They aren't sure yet if she's had a stroke, or what might have brought this on. More childlike than ever, she is smiling and sleeping a lot. She talks in hushed whispered tones and can't answer most questions posed to her. I watched her during one of her moments of slumber and noticed she was talking to herself a little. I wonder if she's chatting with my father, her own Prince Charming who passed on before her. I wonder if he's there even now near her, whispering the words of love he's always said to her. I see her smile in her sleep and can only imagine.