Showing posts with label dementia stories. Show all posts
Showing posts with label dementia stories. Show all posts

Friday, April 19, 2019

The Memory Blanket







The small afghan lay folded across my lap while I tied off the last threads of yarn. Old friend, I thought, rubbing my hand across the delicate surface, it’s been quite a journey you and I have taken together. What started as a small project meant to keep idle hands busy and a mind filled with worry at peace, was finally at an end. When I stretched it out before me, my heart sank. The rectangle was distorted, imperfect. And the colors I’d used looked hideous to me. Where was the soft, warm blanket I’d worked lovingly on for so long?

When my father passed away a little over a year ago, and caregiving for Mom’s Alzheimer’s became the new normal, I had to have something to occupy my downtime in the evenings. I found several skeins of different colored yarn in my crocheting tote bag, ones that were bought for older projects that were already completed. A lap blanket would be a good project. I could make it for my mother.

The blanket became a quest of love. Mom was always chilly. It would be perfect to tuck around her as she sat on her favorite spot on the sofa. Or perhaps she would snuggle with it in bed. I hoped she would like the fact that it was made just for her and began to work on it every chance I could. During television time with my husband at night, during the many doctor appointments my mother had each week, the tote bag filled with colorful yarns, a small pair of scissors, and my favorite crocheting hook was always by my side. Somehow it was comforting that no matter where my mind wandered, no matter how confused Mom was becoming, or worse yet, the fact that her health began failing, at least my hands felt useful when I did not. 

Then the worst of it had happened last March. My heart felt as if it splintered into tiny shards. I’d taken my mother to a high school play of Beauty and the Beast. She’d sung along and laughed. She wanted a picture with the princess after the show. How could it have been that I found myself sitting in a rehab facility one week later wondering if she would ever recover? She seemed lost as if the dark recesses of her brain had begun to close some of its doors tightly. I wondered where her speech and smile had gone. I wondered why she slept so much. I wondered about the odd little phrases she uttered; things that made no sense at all.

We’d found out that Mom had several small strokes. They had affected her ability to communicate properly. Though she had no paralysis, it appeared Mom started to give up. She couldn’t dress herself any longer or even walk. Secretly I’d wondered if she was willing herself away somehow in an attempt to be reunited with Dad. She slept most of the time as I sat by her side. Then, more than ever, I’d needed my crocheting project. While my hands worked at the yarn, my mind worked at prayer. I could look up; watch my mother sleep without missing a stitch. Unable to do anything for Mom, it seemed that as long as my hands were busy, I felt useful somehow.

My mother would awaken and watch me crocheting. I talked of everything and anything in those moments to engage her, to find a spark of the life she once had. Several times I spoke of the little blanket.

I lost my mother in July of last year. I had so wanted to have that blanket done for her. Though I hadn’t been able to give it to her while she was living, I thought about laying her to rest with my final gift. It still wasn’t finished. 

Thinking back now, I’m glad the project wasn’t completed because I was the one who needed it. It gave me a chance to reflect on my visits with Mom. With every crocheted row, a new memory would pop up. The tears would flow, but they weren’t entirely tears of sadness. I knew my mother was reunited with Dad and at peace.

 The blanket, which had been such a big part of the close, quiet times I’d spent with my mother on her final journey, would always be a reminder to me of her very good life and all the moments with her during those last precious months.

As I looked again at the distorted shape and the un-matched colors of the finished lap afghan, I realized some important lessons. Life had been like that for my family in the last several years; not perfect, but certainly workable. Sometimes our journey had been ugly and the outcome, unclear much like the pattern I’d haphazardly seemed to crochet. The mismatched yarn in each row reminded me that there had been differences in our little family, and though colorful at times, it certainly was messy at others. But much like the soft fabric, I realized that my Heavenly Father had given me a softened heart toward my aging parents. And the warmth that even an imperfect blanket provided showed me that my own imperfections could be used for something good. No longer unattractive, the blanket has become a masterpiece, one that I will treasure forever.





Monday, February 11, 2019

Real Valentine's Day Love





For Valentine's Day I wanted to share something very personal and special. Following are some of the words I found written on the backs of envelopes, cards and scraps of paper from my dad to my mother.

Good morning honey,
Thank you my honey for everything. I love you so much--you are my one love, my only love you'll always be. I want your love and happiness for as long as we both have. You mean the whole world to me. Thank you for sharing beauty and nature and true love. All my love, Rich


Dear Hon, I want to thank you for 30 years of love, patience, and understanding. You've truly lit up my life. I love you more than any words will ever tell. You are really a very special person and I thank God that he sent you to me. I hope for at least another 30 years with you my love. Forever your love, Rich

 
Things I want you to know:
by Richard Mattia to Eileen Mattia

If I were to do it all over again, I would pick you. You bring more love into the world than anyone I ever knew or know now. You are the most unselfish person in the world. I love you so much that it hurts. I love you because of the way I feel with you--warm, true, heartfelt love. I hope you feel this for me for me also. Love forever, Rich

For Eileen:
You're the one for me, you know
Hate to ever see you go
With you I'd like to always be
I love you truly don't you see.
For if we ever have to part,
I know for sure it would break my heart.
I love you I love you every day
And that's the way it will always stay.
Yours forever Rich



Just a few lines to let you know I'll be thinking about you. I love you truly honey. Have a real nice morning. I'll miss you. Enjoy a cup of coffee for me. See you soon. All my love, Rich

I love you more each passing day
Let nothing ever take that away
Thank you for your kindness
Thank you for your love
You are Eileen, my mate, my dove.
I want you to be happy, I want you to be gay
For this I'll strive forever, now and every day.
I want to be yours forever
Let nothing change that ever.
For my love is always true,
Don't ever let's be blue.
All my love, Rich

All my love to a really good person. Thank you for showing me many beautiful things and teaching many more practical things along with true love. I'm looking forward to our date for tonight. All my love, Rich

Good morning honey. Many kisses on ya! I'll miss you today. Have a good day. All my love, Rich




Happy Anniversary My Love!!!
Proud to call you my wife
The only love of my life.
We've been through so many things
God's given you angel's wings.
I love you more after 41 years
Hope there are never more tears.
Love you forever,
Rich

Good morning beautiful,
Thank you for being so nice. Had a real good day with you yesterday. You really looked gorgeous. Love you. Hope you had a good night's sleep. The pecan loaf was delicious. All my love honey for you. See you soon. Love & kisses, Rich

There was a basket my mother kept near her kitchen table that spilled over with love letters and cards that Dad gave her throughout their marriage. We lost both of our parents in the last two years, and these writings have become a beautiful link to his love for Mom.

Every so often when I visited, Mom pulled a crumpled page out and asked in a shy, giggling, school girl kind of way, “Did you ever see some of the notes your father wrote me?”

In her dementia, Mom didn’t realize that I’d heard the letters read many times. But to her, it was always the first time. It was a way to reignite the passion she and Dad shared, and helped her to see herself as my father always did: as the young beauty he once courted.

Though the ravages of aging were upon her, the thinning, gray hair, bent body, and same sweatshirt stained with jelly from the previous day; inside was the young girl. The one my father loved.


Saturday, December 16, 2017

A Bittersweet Christmas Visit






Tomorrow my brother and I will visit the residents at the care facility which housed our mom for several months this year bringing them a little Christmas cheer. It will be the first time I've been back there since she passed away, and a very bittersweet visit for me. For I'll picture Mom around every corner, in all her usual places. The dining room where she sat with other ladies, enjoying small parties that were held there. The hallways we wheeled through, and even walked when she was still able. The outdoor seating area where I would take her for little rides round and round with her wheelchair, as I talked about the chirping birds, blue skies, butterflies--anything to share with her.

I'll see her petting the resident dogs, becoming so animated when they were near. And then I'll envision her sneaking morsels of food to them while another lady yelled for her to stop. There should be familiar faces: the nurses and aides who gave tirelessly of themselves to her. Some of the residents we had gotten to know well and spoken with, each with their own life story.

But when it comes time to walk past the last place I spent time with my mother, her room, I know my heart and soul will grow quiet, for it will almost be holy ground for me. I will picture myself touching her hair and face lightly while singing songs that she sang to me as a child. I will watch her chest rise and fall, every breath precious as she began the process of leaving this world. I'll remember how her eyes were focused above her--on things I could not imagine.

I'd pictured what Christmas might be like this year before we knew we were losing Mom. How the holiday would be so different without her at home, and how we would cope with celebrating in a nursing home. I thought we would have her much longer. I couldn't imagine what life would be like without her. Yet here we are now, facing the first Christmas without both of our parents.

I feel her near many times. I've dreamed beautiful dreams of her, some that feel like she is right there with me. And I hold fast to items she once held dear: a wedding band, a cat necklace, simple clothing and many pictures.

I think about tomorrow and realize that the care home is only a building, nothing fancy or special. But it's the place where beautiful souls sometimes have to wander before their final journey home. My mother journeyed there, but didn't stay very long. God called to her, and Dad waited for her. And when she said the words, "I want to go home," God answered.




Sunday, October 15, 2017

Halloween Memories









 Halloween has always been one of our family's favorite holidays, for we are all big kids at heart.
Take Mom for instance. The above photo is from last October twenty-eighth. I had been visiting for the day, and my nieces were painting pumpkins. Mom wanted in on the fun, and we gave her one of the bigger pumpkins and a few paints. Though I thought the design on hers turned out a bit silly and I'd grown frustrated of hearing her repeat the same questions over and over to my nieces, I never would have said a thing to her. She glowed as if painting a masterpiece smiling her missing-tooth grin and singing crazy songs; as content as my nieces were.

Back in the day, Mom spent plenty of time and money choosing really good candy to give away for the special night though much of it would end up in her belly, and we'd have to purchase new bags by the time the day rolled around. She would also help orchestrate the spooky porch and walkway to their house; every bit the "manager" as she pointed to where the gravestones should be, and the other assorted frightful objects.

I think back to those elaborate decorations of years past; I remember countless little children who seemed too afraid to come to Mom's porch to receive their candy until my son Matt would unmask from his Michael Myers or Samara costume, to show them it wasn't real. I remember Mom sitting outside in nicer autumn weather, a bowl of candy balanced on her lap as she greeted each child with a smile and a "Happy Halloween." Creepy music played from the hidden tape recorder stashed underneath the large bush.

My parent's house was the hub for many of our friends through the years to gather since the connecting roads and houses sat pretty close and walking always felt safe in the neighborhood. There was something magical on our Halloween nights. The air seemed to smell of chimney smoke, crisp, tart apples and the warm, cooking scent of jack-o-lanterns lit with the small stubs of candles on neighbor's porches. The swish of  fallen, crunchy leaves underfoot as we ran from house to house.

I think back to the time when my own children were small, and the Halloween exchange as we called it, with their bags of booty dumped out on the floor so we parents could check it over first. Then the trading would begin; each child finding their favorites to barter with. Countless haunted houses my brother and his friends fabricated in my parent's basement--all good clean fun!

 And was it all that long ago that my father walked my little legs off when I was a child; practically pulling me along to get more, more, more candy while I sweat beneath the old plastic Cinderella mask with its stretchy elastic band, hardy able to see through the small eye holes, barely able to breathe through the tiny mouth hole?

This year, the house is silent and partially empty. No creepy masked cement deer in the front yard, or yards of fake spider web stretched all over the porch and bushes. No porch witch stirring her plastic cauldron, no Styrofoam gravestones.

We will miss Mom during this holiday for we know how much she enjoyed it. I will miss the annual phone call I placed to her each Halloween from my home an hour away so that I could hear how their own night was going--all the fun they were having. I will miss the sound of the movie "Halloween" playing loudly in the background, and my father saying "It's all over but the shouting. Shut it down," as he switched off the outdoor light barring any late stragglers from knocking at their door.

I will content myself with memories; warm, cozy memories, and in my heart I will feel the love and fun in the Halloween legacy Mom left behind.